Since very few people have GPP, your doctor may not recognize it right away
Diagnosing GPP can take time
As a chronic disease that doesn’t go away, generalized pustular psoriasis (GPP) symptoms can be very difficult to live with. The good news is there are treatments that can help. Getting an accurate diagnosis as soon as possible is a key step in finding the treatment that may be best for you.
GPP is diagnosed and treated primarily by dermatologists, but some rheumatologists may also diagnose the condition. Many doctors haven’t seen GPP before, and it can look like other conditions, so it can be tough to confirm. Often, GPP is diagnosed during or after a flare, when a person experiences a sudden eruption of pustules.
If you suspect you may have GPP, it can help to see a specialist who has experience with the disease and to learn more about it before your conversation. Your doctor may ask about your symptoms, medical history, and any family history of skin conditions.
Taking an active role in your diagnosis can help you get answers faster
About half of people living with GPP also have plaque psoriasis. Since each disease is different, knowing which one you may have or whether you live with both conditions is important.
Here are some steps you can take to help confirm your diagnosis and find the right care plan:
the common symptoms of GPP and how it differs from other diseases like plaque psoriasis
including those you can see (like skin pustules or scaling) and those you can’t (like fatigue, fever, or joint pain). Take detailed notes, including photos, on the frequency of your symptoms and how they’re impacting your well-being (including missed time at work or with friends, feelings of anxiety, etc)
if they have experience treating GPP. If not, you can ask for a referral to an expert who does
as soon as possible. Bring a list of your symptoms, any photos, and your questions
and what treatment options may work best for that disease
Prepare for your appointment
Being honest about your symptoms
Hear Dr Friedman’s advice for how to truly convey the impact of GPP on your life with your doctor
TAKING BACK CONTROL
“A part of being in control is being vocal with your doctor. If treatment is not working or symptoms are getting worse, definitely let your doctor know.”
TAKING BACK CONTROL
“You have to keep going. You have to keep looking...if something isn’t right, keep plugging. When my doctor said I had athlete’s foot, I said, ‘Something is just not right. There’s no way that’s correct.’”
TAKING BACK CONTROL
“Find your voice. Advocate for yourself. Take a stand. Don’t take no for an answer ever. You deserve to be seen. Always.”
TAKING BACK CONTROL
“You should be able to have a good relationship with your provider where they will actually listen to you. I deserve to be heard. I know that I’m not going to just accept getting turned away. I’m not giving up.”
Find a specialist
This tool can help you find a doctor in your area who has experience with GPP.
TERMS AND CONDITIONS
Boehringer Ingelheim Pharmaceuticals, Inc. is providing this tool to help patients find specialists in their area. This list is updated on a quarterly basis.
You are ultimately responsible for the selection of a physician and it is an important decision that you should consider carefully. This specialist locator tool is just one source of information available to you.
