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Living with GPP is not just about flares

Generalized pustular psoriasis (GPP) can significantly impact your day-to-day beyond the physical symptoms. The disease can take an emotional toll, including feelings of fear, anxiety, and even hopelessness. Many people worry about when the next flare may occur, if their condition will worsen over time, and how GPP may affect their ability to participate freely in daily life.

Even when symptoms are mild, GPP can impact everyday activities.

Difficult emotions

In recent surveys of people living with GPP:

100% of people with GPP felt an impact on their emotional health, illustrated by a head with check marks
67% of people with GPP live with fear and anxiety, 71% fear a GPP flare, illustrated by a lightning bolt over a person’s head
59% of people with GPP felt depressed and hopeless, illustrated by a cloud over a person's head

Challenges with daily life

People reported a high impact on their ability to:

58% of people with GPP report difficulty exercising, illustrated by a barbell
52% of people with GPP report difficulty being intimate with a partner, illustrated by two intertwined hearts
47% of people with GPP report difficulty wearing shoes, illustrated by a sneaker
44% of people with GPP report difficulty running errands, illustrated by a shopping cart
41% of people with GPP report impact on ability to socialize, illustrated by two people talking
“ Beyond the physical pain and discomfort of GPP is the fearful anticipation of, ‘When is the next flare?’ The unpredictability often leaves my patients experiencing a lack of control. ”
Clinical Professor of Dermatology at Yale University School of Medicine

Acknowledging the impact

Hear these community members explain how GPP has affected their daily lives.

Over time, many people in the community have learned to live with these consequences.

While it may seem as though this is just “life with GPP,” it doesn’t have to be.

Change begins today

GPP is a lifelong disease, so it’s important to consider both your mental and physical health. Here are some simple steps you can take toward change:

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Consider

which symptoms impact you the most and how they’re affecting your daily life

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Find

a dermatologist who has experience treating GPP and have an open, honest conversation about your daily reality, what’s important to change, and how your treatment plan can support those goals

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Connect

with others to find hope and strength in shared experiences

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Advocate

for what you need to make life better

Caring for your GPP is not just about your skin but also about improving your everyday life.

Refusing to settle

Hear from just a few of the many people with GPP who are striving to live life to the fullest.

Recognizing “good” is not good enough

Denying defeat

Taking back control

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Discover tips for self-advocacy

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Find a specialist